Letter to parents
I would like to introduce you to CADDAC, a national ADHD not-for-profit organization. Let me begin by reassuring you that ADHD is a legitimate neurobiological disorder. It is not caused by bad parenting, nor is it the “fad” diagnosis that some in the media would have us believe. Children with ADHD are not manipulative, lazy or bad - they are children with unique needs who require extra support and understanding.
CADDAC was originally formed by parents who not only understand this, but have also dealt with the same confusion, worry and frustrations that many of you are experiencing right now. Although scientific research during the past 20 years has helped us to understand ADHD better, there has been no significant change in the way ADHD is being serviced in the education, medical and social systems. CADDAC was formed as a national ADHD advocacy organization to bring together local ADHD organizations and individuals affected by ADHD, provide a way for them to network and to form a unified voice around ADHD issues.
Many of us have spent years educating ourselves about ADHD and looking for help, and support for our children and families. We personally and professionally understand the current lack of services, resources and treatment options for ADHD. We struggle with the lack of options to refer people to each and every day. In the fall of 2006, we launched our new web site www.caddac.ca
. This site includes information for parents, children, adolescents, adults and educators. What sets our site apart from many others is the information is for you, the parent
. We inform you on how to advocate for your child in the school system, what to look for in a proper medical and psychological assessment and inform people about what is happening on the political front around ADHD. The site offers information on possible financial aid, ADHD support groups and resources across the country.
Perhaps more than anything else, we offer parents a way to connect with other parents of ADHD children, to share with others who are also experiencing the frustrations of navigating the medical and educational systems, as well as the emotional roller coaster of parenting a child or children with ADHD.
We also encourage parents who would like to set-up a local support organization to access our web “Support group” page for tips on doing this. If you are interested in organizing a parent support group of any size or structure give us a call. Parent support groups, even if they consist of a few parents meeting for a coffee once a month at the local coffee shop, can be extremely helpful. We are eager to help you out with this, offer suggestions and share our own experience in having run these groups for many years. If you wish, we will list your group on our support page so other parents in your area will be able to find you.
We strongly encourage you to become members of CADDAC and also to join our advocacy efforts.